IMPACT OF THE JERK
PD dyskinesia can have
both a physical and
PD dyskinesia can affect not only the physical aspects of a
person's life, but the emotional ones as well. Emergence of dyskinesia can lead to reductions in levodopa, potentially resulting in an increase in PD symptoms and more "OFF" time. It can also impact the burden of care for family members and other care partners.
Read about one person's journey through
PD diagnosis and dyskinesia discovery
Disruption in everyday activities
Levodopa treatment changes
Avoidance of other people
Read about one person's journey through PD diagnosis and dyskinesia discovery
“It’s just difficult to control the symptoms. Other people notice . . . when I go to the grocery store, you catch people looking at you, and it’s embarrassing.”
—Person living with PD dyskinesia, age in early 70s, diagnosed at 62
Sometimes, dyskinesia is so severe that it becomes more bothersome than Parkinson's disease (PD) itself. Dyskinesia has been reported as being a problem in the everyday lives of people with PD, especially when:
Percentages calculated based on responses from 93 participants in the Adamas Quantitative Survey of People with PD and Care Partners.
Other activities affected by dyskinesia include cooking, eating, dressing, and brushing teeth.
Talk to your doctor about how dyskinesia is impacting you. For tips on starting a conversation,
HEAR FROM OTHERS
GOING THROUGH IT
It's not uncommon to experience stigma when you have PD dyskinesia, but you are not alone.
THIS IS BRADY
Brady lives with PD dyskinesia and it can be a jerk—watch him share one of those moments.
THIS IS LAURA
Brady's wife and care partner shares her thoughts about his PD dyskinesia.
THIS IS Dr. Dewey
Dr. Dewey and Brady talk about PD dyskinesia and how it differs from tremors.
STRESS AND PD DYSKINESIA
Dr. Dewey and Brady agree that stress has a big effect on PD dyskinesia. Dr. Dewey dives into the environmental triggers of dyskinesia.
WITH PD DYSKINESIA
Motor complications can occur in the morning and anytime throughout the day. As Parkinson's disease (PD) gets worse, you may experience more frequent and unpredictable changes between "ON" time, "OFF" time, and dyskinesia.
In a survey of 40 people with PD, 83% of them said they would rather experience "ON" time versus "OFF" time, regardless of dyskinesia severity.
KNOW THESE TERMS?
Uncontrolled, involuntary, jerky movements as a result of PD progression and treatment with levodopa medications
When medications are at their highest levels in your bloodstream; the most common type of dyskinesia
When medications are working and you are moving, but not always with good control
When medications lose their effect and you start to lose movement control
Different stages of movement control as medication levels in the body rise and fall
"ON" time without bothersome dyskinesia; when you have good movement control
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